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Poll: Caring For Spouse More Stressful Than Mom

Stephen Lance Dennee/AP
By LAURAN NEERGAARD and JENNIFER AGIESTA

WASHINGTON -- You promise "in sickness and in health," but a new poll shows becoming a caregiver to a frail spouse causes more stress than having to care for mom, dad or even the in-laws.

Americans 40 and older say they count on their families to care for them as they age, with good reason: Half of them already have been caregivers to relatives or friends, the poll found.

But neither the graying population nor the loved ones who expect to help them are doing much planning for long-term care. In fact, people are far more likely to disclose their funeral plans to friends and family than reveal their preferences for assistance with day-to-day living as they get older, according to the poll by The Associated Press-NORC Center for Public Affairs Research.

And while 8 in 10 people who've been caregivers called it a positive experience, it's also incredibly difficult.

"Your relationship changes. Life as you know it becomes different," said Raymond Collins, 62, of Houston, who retired early in part to spend time with his wife, Karen. Diagnosed with multiple sclerosis 15 years ago, her mobility has deteriorated enough that she now uses a wheelchair.

Collins, a former business manager for an oil company, said he has felt stress, frustration and, at times, anger.

"The traditional vows are through sickness and health, for richer or poorer, for better or worse, etc.," he said. "At the age of 25 and 32, you say those things and you're high on love and healthy, and life is all in front of you. The meanings of those words are pretty much lost, even when you concentrate on them."

Still, he said caregiving has strengthened his marriage commitment in ways he couldn't foresee as a newlywed nearly 37 years ago.

Caregiving may start with driving a loved one to the doctor or helping with household chores, but progress to hands-on care, such as bathing. Increasingly, family members are handling tasks once left to nurses, such as the care of open wounds or injections of medication.

With a rapidly aging population, more families will face those responsibilities: Government figures show nearly 7 in 10 Americans will need long-term care at some point after they reach age 65. Yet just 20 percent of those surveyed think it is likely they will need such care someday. Almost twice as many, 39 percent, are deeply concerned about burdening their families.

Contrary to popular belief, Medicare doesn't pay for the most common types of long-term care -- and last year, a bipartisan commission appointed by Congress couldn't agree on how to finance those services, either. But the AP-NORC Center poll found nearly 6 in 10 Americans 40 and older support some type of government-administered long-term care insurance program, a 7-point increase from last year's AP survey.

The poll also found broad support for a range of policy proposals:
  • More than three-fourths favor tax breaks to encourage saving for long-term care or for purchasing long-term care insurance. Only a third favor a requirement to purchase such coverage.
  • Some 8 in 10 want more access to community services that help the elderly live independently.
  • More than 70 percent support respite care programs for family caregivers and letting people take time off work or adjust their schedules to accommodate caregiving.
  • Two-thirds want a caregiver designated on their loved one's medical charts who must be included in all discussions about care.
Oklahoma this month became the first state to pass the AARP-pushed Caregiver Advice, Record and Enable -- or CARE -- Act that requires hospitals to notify a family caregiver when a loved one is being discharged and to help prepare that caregiver for nursing the patient at home.

Just 30 percent in this age group who say they'll likely care for a loved one in the next five years feel prepared to do so.

Women tend to live longer than men and consequently most family caregivers, 41 percent, assist a mother. Seventeen percent have cared for a father, and 14 percent have cared for a spouse or partner, the poll found.

The tug on the sandwich generation -- middle-aged people caring for both children and older parents, often while holding down a job -- has been well-documented, and the new poll found half of all caregivers report the experience caused stress in the family.

But spouses were most likely to report that stress and to say caregiving weakened their relationship with their partner and burdened their finances.

Spouses are more likely to handle complex care tasks, on duty 24-7 with less help from family and friends, said Lynn Feinberg, a caregiving specialist at AARP.

Physically, that can be harder because spouse caregivers tend to be older: In the AP-NORC poll, the average age of spouse caregivers was 67, compared with 58 for people who've cared for a parent.

Virginia Brumley, 79, of Richmond, Indiana, cared for her husband, Jim, for nearly five years while he suffered dementia and Parkinson's syndrome, care that eventually required feeding, dressing and diapering him.

"I think I loved him more after I started caring for him. I saw what a wonderful person he was: his [positive] attitude, his kindness, his acceptance of things," she said.

But he lived his last 11 months in a nursing home because "I couldn't handle him anymore," Brumley said. "He was too big for me. He was as helpless as a baby."

The AP-NORC Center survey was conducted by telephone March 13 to April 23 among a random national sample of 1,419 adults age 40 or older, with funding from the SCAN Foundation. Results for the full survey have a margin of sampling error of plus or minus 3.6 percentage points.

-Associated Press writer Stacy A. Anderson and News Survey Specialist Dennis Junius contributed to this report.

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Pam

I took care of my girlfriend in Florida for 11 months. She had had 3 back surgeries, and a pain pump installed. She was 54, her husband, 65. I got paid nothing, and she ended up in the Behavioral Care Floor twice in less than 1 year. They finally took her off ALL of her medication, she spent 3 weeks in the I.C.U; and got better. Three months after she came back, so to speak, he was diagnosed with liver and pancreatic cancer. The pancreatic cancer is gone, not the liver. Thanks for the GREAT ARTICLES, DAILY FINCANCE! :)

May 19 2014 at 10:10 PM Report abuse rate up rate down Reply
davefromfwb1

My long term plan to have a nice life after the age of 60 is to move out of this country..

May 19 2014 at 6:30 PM Report abuse +2 rate up rate down Reply
christine

It 's call personal responsibility . LTC insurance while you are young is very affordable. AND it will most likely never increase the premium. So get it while you are young that way you don't have to burden your children with personal things in your daily life. Get it! Check into it now. It is not that expensive. I waited until I was 43 and when I married my husband was 60 years old and WE were able to get him an affordable polciy.

May 19 2014 at 4:14 PM Report abuse +1 rate up rate down Reply
toneitup

Great strides were making here in the US

May 19 2014 at 1:03 PM Report abuse rate up rate down Reply
Eddie

Although the article was very informative, and thank you for that. The use of the term "mom" has lost all it's meaning, the word is so over used. I find myself avoiding any articles with "mom"in it.

May 19 2014 at 12:05 PM Report abuse +1 rate up rate down Reply
pllove49

Gosh .... you don't think the wealthy have already made plans for this stuff.

May 19 2014 at 8:21 AM Report abuse rate up rate down Reply
eturoel

"Poll: Americans Would Rather Care for Mom than Who?"

How could anybody miss this ? It is FOR WHOM !!!

May 19 2014 at 8:07 AM Report abuse +3 rate up rate down Reply